Development of a Group Educational Intervention for Sexual Functioning and Intimacy Concerns in Patients with Multiple Sclerosis

Sexual functioning problems are disproportionately frequent among individuals with multiple sclerosis (MS) and are associated with reduced sexual activity and satisfaction. Although effective treatments are available, patients often do not communicate with physicians or partners as openly and frequently as needed to optimize sexual functioning. The purpose of this study was to examine the effectiveness of a group-level educational intervention to increase perceived knowledge and communication ability regarding MS-related sexual health and intimacy concerns. Patients with MS and their partners attended a workshop that included didactic presentations, a multidisciplinary panel discussion, and a presentation by a sexual health consultant. Participants (N = 33) completed questionnaires before and after the workshop describing their sexual functioning, perceived knowledge of MS-related sexual problems, and willingness to communicate with partners and health-care providers about these issues. The results indicated a high frequency of sexual problems. Intention to discuss problems with one's significant other and health-care providers was associated with race and gender. Participants reported a significant increase in their knowledge of MS-related sexual problems and sexual satisfaction. Moreover, a trend was observed with regard to participants' likelihood of discussing these issues with partners. This study provides valuable information on the benefits of a multidisciplinary, real-world intervention for sexual/intimacy problems.